Disability ministry- Why it is important, and suggestions for action

 In my previous post I shared how my heart has been stirred with an urgency two care about the practical and spiritual needs of individuals with disabilities. As a follow-up, I thought it might be useful to offer some practical suggestions and insights in what these needs might be. The primary focus would be how to be welcoming in a faith community and encourage those affected by disabilities in their journey of faith.

Several years ago I enrolled in the course entitled beyond suffering offered through Joni and friends. This was an in-depth study of how to prepare for and engage in ministry to and with those with disabilities  as part of my coursework I under took a project two interview individuals in order to identify needs and help churches to be more welcoming and inclusive  

What follows is the report which I submitted.

Beyond Suffering Course

Ministry Project Report

 

My ministry project was to conduct one on one interviews with people with disabilities.

Motivation (Why I undertook this project)

My intent was to interact with individuals with disabilities to gain insight into how Christians individually and the Church collectively could be more effective in addressing needs and communicating the extravagant love of God. Also, this project afforded to me opportunities to engage people in conversation about God and share His heart. 

Methodology (What I did)

I conducted qualitative research interviews with people with disabilities concerning their faith journey. Conversations were had with 11 individuals. They represented a variety of mobility limiting disabilities though the majority had a diagnosis of Cerebral Palsy. The interviewees ranged in age between 21 and 72. When face to face contact was difficult due to distance or difficulty moving (for example one woman was homebound as health concerns necessitated primarily bed rest), available technology, such as Skype was utilized.

In a conversational manner I asked a series of questions to gather information about their relationship with God and their participation in the church.

The questions included the following:

Can you identify things that you have felt have been helpful in your involvement in a faith community and more important your relationship with God. 

Also are there things that have made your pursuit of faith more difficult. Are there barriers you've encountered?

In addition I'd be interested in hearing whatever you'd care to share concerning whether you believe disability or suffering has impacted your life, in particular as it relates to matters of faith. 

Do you have a church home? A place you attend regularly. What is it like for you? 

What have individuals done to make you feel welcome?

 

Have you encountered church policies or practices that either fostered or hindered inclusion?

What has been hurtful or less than helpful?

Is there anything else you'd like to say? Anything you feel those in ministry need to know to be more effective?

Message (What I learned)

The individuals I had the privilege to interview represented a variety of life experiences. I appreciated that they took the time to honestly talk about their involvement with the church and their relationship with God. They each had a valuable perspective to offer.

I will summarize many highlights of comments shared. Common or recurring themes will be identified and I will acknowledge personal insights when statements made a particular impact on me.

There were a number of common themes that I will categorize as accessibility, acceptance and assimilation

• Accessibility

Almost without exception the issue of access was mentioned. Those who indicated that they do not currently have a church home, for the most part indicated that access to church facilities was the primary reason. Another reason was lack of transportation to attend services. Some mentioned using the internet to watch live services or listen to online sermons and Bible teaching. While transportation difficulty and limited accessibility were common reasons cited for not regularly attending a church, other reasons that are common in the general population such as not wanting to attend without their spouse, or being in a new location were also given. This seems important to point out and to clarify that not everything has a direct disability correlation.

It was also repeatedly mentioned how it is important to consider not only a ramp or lift into the building but it is necessary to be aware of other facilities as well such as seating, rest rooms and drinking fountains. Accessibility also includes such accommodations as adapted curriculum, large print or braille Bibles and hymn books or song sheets, as well as assistive listening devices and sign language interpreters. At times it may be appropriate to provide an aide to help. Always ask what the best strategy is to be of help. It was frequently mentioned that a common oversight is that while access to the formal worship services may be possible, often there are barriers to participation in other functions of the church. For example, midweek Bible studies or social functions are commonly held in locations not accessible to those with .mobility limitations. Being left out of the additional activities sponsored by a church makes it difficult to feel one is a valued member of the community.

When discussing accessibility issues it was brought up by several people how it was appreciated when their input was sought when making structural modifications to ensure that it would actually work for them and other wheelchair users rather than assuming that a change was adequate. Another interesting and vital factor related to what would facilitate maximum participation is allowing sufficient time a person may need. One young woman stated how it is crucial to remember that “life activities take longer when you have a disability. She recounted her experiences when she took part in a tour with her church choral group. Not only was venue access at times overlooked but the schedule was too challenging because there was not an understanding of how much time and energy was required to get ready and perform tasks.

Accessibility is not just about ramps and elevators and widened doorways, it’s about creativity and open hearts.

 

 

 

• Acceptance

It is not only barriers in architecture but also obstacles in attitude that need to be addressed. Many interviewees shared how important it is for them to be welcome and accepted.

One point that was raised repeatedly is that it is offensive to focus solely on physical healing as if to presume that is the one and only desire of people with disabilities. Statements such as “If you had enough faith you would be healed” are hurtful. I also happen to believe they are untrue and not soundly founded on scriptural principles. Rather than supposing that people with disabilities have a problem that needs to be fixed, realize everyone can be loved as they are Unique differences can be celebrated. For example the story was told by a college student how she performed in her church Christmas program. Her wheelchair was decorated and highlighted as beautiful.

When reflecting on this common preoccupation with physical healing one woman wisely commented: “God has to be more than a magician. It is not a very mature relationship if we only want God to make things easy for us. We can have a relationship with Him in the midst of difficulties.”

A willingness to approach and take initiative to get acquainted with someone who is disabled was cited as being appreciated. Often fear of the unfamiliar, or being worried to make a mistake will cause someone to hold back and not reach out. This desire on the part of the church to not offend may instead be interpreted as aloofness or rejection. One woman told how she decided that she needed to be the one to put forth the extra effort if relationships were to be formed. She became a morning greeter at her church. On the other hand, one young man who has significant mobility limitations as well as speech difficulties, said that a positive thing he appreciates about his church is “They treat me like I’m a regular person.” My heart ached as I wondered about the rejecting experiences he must have encountered so that to be talked to and included was a novel idea to him. And my heart was stirred to be reminded what a place of healing the church can be.

“Don’t be afraid to ask questions. Do not assume anything”. (Just because someone might have a label attached to them that does not define the totality of who they are)  

One woman who struggles with depression in addition to her physical disability felt the church needs to be more forgiving and less judgmental.

One matter I took note of is how a few of the younger individuals interviewed described how it was difficult for them in adolescence as the activities and topics of discussion were geared almost exclusively for their able-bodied peers. This may have implication for leaders of youth groups so in the planning of programs they will be sensitive to the needs of teens with disabilities.

 

• Assimilation

It is essential that people with disabilities be included as part of the Body of Christ.

There may be instances when separate specialized programing is appropriate to address the challenges a disability may impose on participation in instruction or recreation. However, the individuals with whom I spoke preferred to be included whenever possible

It needs to be recognized that each of us have God given gifts and talents to contribute.

People with disabilities do not want to always be objects of ministry. We all long to have lives full of purpose. Granting opportunities to serve is an integral part of helping those with disabilities to truly be included. It is inappropriate to assume that the only arena where a person with a disability can serve is related to disabilities. While it is not wrong to invite someone affected by disability to be on a disability related committee, recognize that they may have other interests, passions and callings as well. I spoke with people who have a variety of ministries.  For instance, one woman wanted to serve the homeless, another has a passion to teach others how to reach Muslims and one is a gifted Bible teacher and writer. As I engaged in conversation with a woman who is homebound I was struck with the thought that she has a reverse disability ministry. When people from her church come to visit her she is equipped to offer a smile and words of encouragement. Members of her congregation have started bringing people in need of hope to see her so she can inspire them. She promised the Lord that she would tell everyone He brings through her door about the hope she has because of Jesus. This woman also regularly uses FaceBook as a means to stay connected and be a blessing.

When everyone is exercising how God designed them it is a blessing and advances God’s Kingdom.

 

Mission (What can be done- Action Steps)

Following are several action steps I propose gleaned from personal observation and input from those I interviewed.

One young woman remarked that “Every church should have a disability ministry because the church should be the most welcoming place.”

A vision for the value of ministry to people with disabilities is vital. How is this captured? Perhaps by conducting a survey and discovering how disability touches the lives of members of the congregation (personal experience, family members, neighbors, co-workers etc.) One interviewee shared how it has been difficult to establish a disability ministry at her church until it was no longer just her. A prominent leader acquired a disability and interest in serving those affected by disability increased dramatically. In our discussion we surmised that an emotional or relational connection is helpful to ignite passion.

It came up several times that people with disabilities have the same spiritual and emotional needs as the general population. One woman said that the church should not assume that people with disabilities have no interest in God.

If you have a disability ministry publicize it.

Disability ministry goes beyond Sunday morning. Address the practical needs of individuals with disabilities and their families. (Personal assistance recruitment, equipment maintenance, household or handyman tasks, respite care, transportation, seasonal projects such as Christmas decorating and gift wrapping, socialization.)

Willingness to go the extra mile to do what it takes to be included.

It was mentioned more than once that it would be appreciated if the church could offer assistance or attempt to anticipate needs so the person with the disability did not always have to initiate a request.

Disability Awareness training could be helpful in dispelling fears and instrumental in providing practical tips for interacting.

The Americans with Disabilities Act was instrumental in bringing about change one woman said and then we agreed that it would be a good thing if the Church could be a forerunner in promoting dignity and inclusion.

And finally recognize and implement the mandate clearly described in the Gospel of Luke chapter 14.

 

My Perspective (Personal Summary)

I undertook this project because I wanted to engage people in a conversation about their relationship with God. I also wanted to identify the positive things that churches are doing to accelerate Christian ministry in the disability community. In addition, feedback I received helped to make suggestions on how congregations and individuals can be more effective in practical service and the proclamation of the Gospel.

I was privileged to enjoy quality conversations. I made new acquaintances and rekindled old friendships. I was challenged by the insights of many and longed for others to experience more of genuine faith and accepting community. There is great need in the disability community as well as much blessing.